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Patient Support

A new rheumatology condition can feel isolating and can lead to feelings of loneliness. There are many groups set up to support people in a similar position. Have a look at the groups below that offer support by providing knowledge, experience, emotional, social or practical help to each other. All the exercise classes on the previous page are also very useful for peer support.

Advice Line

This advice line is specifically for people with rheumatic conditions who are current patients under the care of the UHBristol Adult Rheumatology Department. For further information about the Advice Line please click here

If you feel your problem is urgent or an emergency please visit your local walk in centre / minor injuries unit or call 111 for urgent support and advice.

Patient Advisory Group (PAG) Facebook group

 

https://www.facebook.com/groups/326829881690538

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The Covid19 pandemic has meant that the Patient Advisory Group hasn't been able to meet since March, but our conditions are still very much present. This Facebook group has been set up to help maintain   connections, share experiences and start conversations. All welcome.

If you need help to join the group or have questions please email the Chair of PAG, Mike Deane at mikedeane1812pag@gmail.com

   

North Bristol Support Group

This is a community of people who have a rheumatology condition. The aim is to support each other, discuss ways to cope as well as provide reassurance and motivation in a relaxed environment. It is a mixed age group ranging from 20s to 80s - everyone is welcome to join.

Meetings every third Wednesday of the month between 2pm and 4pm at the Stapleton & Begbrook Club, Frenchay Park Road, Stapleton, Bristol for tea and coffee with biscuits. There are speakers most months including Rheumatology Consultants. Organised days out and other activities occur throughout the year.

If you are interested in attending, please contact group coordinator Angela Miles by email to dm007h2223@blueyonder.co.uk or by phone on 0117 949 5440.

 

National Osteoporosis Society. Bristol and District Support Group

All meetings will be held at: Methodist Church Hall. Westbury Hill, Westbury on Trym, Bristol BS9 3AA. Time: 1.45pm - 3.45pm

For more information please call 01454 614016 or 0117 9518 824.

Patients Representatives Group @ Southmead Hospital

The patient representative group consists of health professionals and patients and meets every 2 months at Southmead Hospital Bristol. This is an opportunity for clinicians to work in partnership with patients to improve and design services around patients' needs and expectations. If you would like to be part of this group kindly contact Dr Minaur's secretary Liz Emery on 0117 4142850.

'Arthur's Place' Young Adults from 18-35(ish)

Arthur's Place is the first online magazine and social network specifically for young adults with arthritis, aged 18 - 35 years, in the UK. At Arthur's Place you'll find a mix of life hacks (helpful tips for dealing with everyday life - from relationships to surviving at university and coping at work), facts about arthritis, great videos and apps, and a network of people sharing their stories and helping each other. http://arthursplace.co.uk