Haemoglobinopathy
Haemoglobinopathies are a group of blood disorders which include
sickle cell disease (SCD), thalassemia, and rare inherited
anaemias.
We are the haemoglobinopathy coordinating centre (HCC) for the
South West Region for sickle cell disease. We are the specialist
haemoglobinopathy team (SHT) for thalassaemia, rare inherited
anaemias and sickle cell disease.
The local patient population is about 90 sickle cell, 19
thalassaemia and 5 rare inherited anaemia patients, requiring 30-40
admissions per year, a weekly outpatient clinic, and multiple day
ward and acute ward attendances.
Our team
Consultants
Dr Sanne Lugthart, Consultant Haematologist and
Haemoglobinopathy Lead
Dr Tom Latham, Consultant Haematologist
Nurses
Nicole Paterson, Senior Specialist Nurse / Adult Lead Nurse for
South West HCC
Prisca Lux, Clinical Nurse Specialist
Psychology
Clinical Psychologist
Pharmacy
Rachel Lloyd, Senior Haematology Pharmacist
Support
Melanie Marsh, Patient Support Worker
Admin Support
Sandra Schneider, Service Coordinator (Adult and Paediatric)
Rhyanna Britton, MDT Coordinator (Adult and Paediatric)
Research/Trial Team
University Hospitals Bristol & Weston NHS Foundation Trust
has a research / trials department. From time to time
haemoglobinopathy clinical trials are carried out and a member of
the clinical trial team will contact patients once these trials are
being offered in Bristol.
Contact us
Contacting our service (for patients)
For any general enquiries please call 0117 342 2774 or 07825 948
038 or email HaemoglobinopathyBristol@uhbw.nhs.uk.
These phones and email address are answered during normal working
days Monday to Friday between 9am and 4pm. (We do not work bank
holidays).
For any emergencies (for patients already known to our service)
please call 0117 342 2011. This is a 24 hour helpline. Please only
contact this emergency number if you are in a sickle cell
crisis.
For patients visiting Bristol or new to the area, not yet known
to our service, please call 999 out of hours if you are in a
medical emergency. During office hours please contact us on the
office or mobile numbers above.
Contacting our service (for GPs or other healthcare
professionals) including screening enquiries
For any general enquiries please call 0117 342 2774 or 07825 948
038 or email HaemoglobinopathyBristol@uhbw.nhs.uk.
These phones and email address are answered during normal working
hours - Monday to Friday between 9am and 4pm.
For any emergencies or out of hours please call 0117 923 0000
and ask for the adult haematology registrar on call or adult
haematology consultant on call.
Our address:
Haemoglobinopathy Team
Bristol Haematology & Oncology Centre
Level 8
Horfield Road
Bristol
BS2 8ED
