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Haemoglobinopathy

Haemoglobinopathy

Haemoglobinopathies are a group of blood disorders which include sickle cell disease (SCD), thalassemia, and rare inherited anaemias.

We are the haemoglobinopathy coordinating centre (HCC) for the South West Region for sickle cell disease. We are the specialist haemoglobinopathy team (SHT) for thalassaemia, rare inherited anaemias and sickle cell disease.

The local patient population is about 90 sickle cell, 19 thalassaemia and 5 rare inherited anaemia patients, requiring 30-40 admissions per year, a weekly outpatient clinic, and multiple day ward and acute ward attendances. 

COVID-19

For up-to-date guidance about COVID-19 in our hospital, please see our COVID-19 pages

Our team

Consultants

Dr Sanne Lugthart, Consultant Haematologist and Haemoglobinopathy Lead

Dr Tom Latham, Consultant Haematologist

Nurses

Nicole Paterson, Senior Specialist Nurse / Adult Lead Nurse for South West HCC

Prisca Lux, Clinical Nurse Specialist

Psychology

Dr Lizzy Banwell, Clinical Psychologist

Pharmacy

Rachel Lloyd, Senior Haematology Pharmacist

Support

Melanie Marsh, Patient Support Worker

Admin Support

Sandra Schneider, Service Coordinator (Adult and Paediatric)

Rhyanna Britton, MDT Coordinator (Adult and Paediatric)

Research/Trial Team

University Hospitals Bristol & Weston NHS Foundation Trust has a research / trials department. From time to time haemoglobinopathy clinical trials are carried out and a member of the clinical trial team will contact patients once these trials are being offered in Bristol. 

Contact us

Contacting our service (for patients)

For any general enquiries please call 0117 342 2774 or 07825 948 038 or email ubh-tr.haemoglobinopathybristol@nhs.net. These phones and email address are answered during normal working days Monday to Friday between 9am and 4pm. (We do not work bank holidays).

For any emergencies (for patients already known to our service) please call 0117 342 2011. This is a 24 hour helpline. Please only contact this emergency number if you are in a sickle cell crisis.

For patients visiting Bristol or new to the area, not yet known to our service, please call 999 out of hours if you are in a medical emergency. During office hours please contact us on the office or mobile numbers above.

Contacting our service (for GPs or other healthcare professionals) including screening enquiries

For any general enquiries please call 0117 342 2774 or 07825 948 038 or email ubh-tr.haemoglobinopathybristol@nhs.net. These phones and email address are answered during normal working hours - Monday to Friday between 9am and 4pm.

For any emergencies or out of hours please call 0117 923 0000 and ask for the adult haematology registrar on call or adult haematology consultant on call.

Our address:

Haemoglobinopathy Team

Bristol Haematology & Oncology Centre

Level 8

Horfield Road

Bristol

BS2 8ED

Referrals
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Outpatient service/Red cell exchanges/transfusions
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Possible Alpha, Alpha 0, Alpha + Thalassaemia
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Patient Support Group Meeting
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The National Haemoglobinopathy Registry (NHR)
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Clinical Guidelines/SOPs
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