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Transition was good. Everyone was friendly, helpful and caring



If you have a metabolic condition you will have been seen by the team at Bristol Royal Hospital for Children. The hospital looks after children and young people with metabolic conditions across the South West of England. The paediatric team run a specialist transition clinic in Bristol on a Friday afternoon once a month. Depending on where you live you may have your paediatric transition appointments in this clinic or we will try to facilitate a transition review in your local outreach clinic; Truro, Plymouth, Exeter, Taunton and Bath.

Most young people with metabolic conditions will need to attend appointments every six months where you will see your consultant, nurse specialist and a dietitian. As part of helping you to manage your condition the team will encourage you to have part of your appointment without your family. This gives you an opportunity to talk with someone in your team, usually the nurse specialist, and ask any questions and helps you take increased responsibility for managing your condition.

Your team will also talk to you about transferring to adult services. There is no designated team adult team for the South West of England.

The Adult Metabolic services in the South-West are:

  • Bristol Royal Infirmary, Bristol
  • Southmead Hospital, Bristol
  • Musgrove Park Hospital, Taunton
  • Queen Elizabeth Hospital, Birmingham - with outreach clinics in Bristol (quarterly) and Taunton (annually)
  • Guys and St Thomas' Hospital, London - With an outreach clinic in Plymouth (twice per year)
  • The Mark Holland Metabolic Unit, Salford
  • The National Hospital for Neurology and Neurosurgery - Queens Square, London
  • Rare Mitochondrial Disorders Service, Oxford

If you have needed to attend Bristol Royal Hospital for Children you might find there are some changes between being in a children's hospital and an adult hospital. Hospitals can vary but some of the changes might involve being an inpatient and staying on the ward. You can talk about moving to adult services and where you will be seen with your team. They will help prepare you for the move.