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Cleft Useful Links

The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.

CLAPA- voluntary organisation supporting people born with clefts and their families

www.clapa.com

Beth's Cleft- story of a girl's journey through the cleft pathway

www.bethscleft.com

Healthtalk- people talking about their experiences of living with a cleft

http://www.healthtalk.org/peoples-experiences/pregnancy-children/cleft-lip-and-palate/overview

Changing Faces- voluntary organisation supporting people who have a visible difference

www.changing faces.org.uk

Outlook - NHS psychosocial service for people with appearance concerns

http://www.nbt.nhs.uk/our-services/a-z-services/outlook 

Bullying and Teasing

http://www.bullying.co.uk           

http://www.childline.org.uk        

http://www.kidscape.org.uk

http://www.kenrigby.net                            

http://www.cafamily.org.uk/advice-and-support/resource-library/parent-guide-dealing-with-bullying/

22q11 Deletion / Di George Syndrome / Velo-cardio Facial Syndrome

www.maxappeal.org.uk

University Hospitals Bristol and Weston Toolkits

You can access our wellbeing toolkits with advice about how to navigate wellbeing alongside a health condition:

/patients-and-visitors/support-for-patients/psychological-health-services/resources/

Optional resources

Website

Description

www.nhs.uk/livewell

 

The NHS website providing information and resources about taking care of yourself and your family.

www.nhs.uk/livewell/childhealth6-15

 

Information and resources about all aspects of child health, including eating, sleep, emotional difficulties, bullying and bereavement.

www.nhs.uk/livewell/youthmentalhealth

 

An information hub offering young people advice and help on mental health problems including depression, anxiety and stress.

www.nhs.uk/oneyou

 

Information, resources and apps to help you build a healthy lifestyle.

www.whatwhychildreninhospital.org.uk

Helping children and parents prepare for hospital and answer some of their questions.

www.uhbristol.nhs.uk/patients-and-visitors/your-hospitals/bristol-royal-hospital-for-children/childrens-website/

 

Website for children about Bristol Royal Hospital for Children, including information about coming to hospital and about procedures and tests.

www.llttf.com

Living life to the full - short courses to help with common mental health difficulties.

www.cafamily.org.uk

Information and support for families with children with a disabililty.

 

Apps

Note:  all the apps recommended here are available for free through the NHS Live Well site (www.nhs.uk/livewell).

Description

Catch It

www.appstore.liv.ac.uk/catch-it

Helping you apply psychological approaches to your mental health and wellbeing.

Stress And Anxiety Companion

www.companionapproach.com

Helps you manage stress and anxiety on the go.

Health Unlocked

www.healthunlocked.com

The social network for health - find and connect with people with a similar health condition.

Health Fabric

www.healthfabric.co.uk

Supports you with your management of long term health conditions.