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Cleft Useful Links

The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.

CLAPA- voluntary organisation supporting people born with clefts and their families

Beth's Cleft- story of a girl's journey through the cleft pathway

Healthtalk- people talking about their experiences of living with a cleft

Changing Faces- voluntary organisation supporting people who have a visible difference


Outlook - NHS psychosocial service for people with appearance concerns 

Bullying and Teasing                       

22q11 Deletion / Di George Syndrome / Velo-cardio Facial Syndrome

University Hospitals Bristol and Weston Toolkits

You can access our wellbeing toolkits with advice about how to navigate wellbeing alongside a health condition:


Optional resources




The NHS website providing information and resources about taking care of yourself and your family.


Information and resources about all aspects of child health, including eating, sleep, emotional difficulties, bullying and bereavement.


An information hub offering young people advice and help on mental health problems including depression, anxiety and stress.


Information, resources and apps to help you build a healthy lifestyle.

Helping children and parents prepare for hospital and answer some of their questions.


Website for children about Bristol Royal Hospital for Children, including information about coming to hospital and about procedures and tests.

Living life to the full - short courses to help with common mental health difficulties.

Information and support for families with children with a disabililty.



Note:  all the apps recommended here are available for free through the NHS Live Well site (


Catch It

Helping you apply psychological approaches to your mental health and wellbeing.

Stress And Anxiety Companion

Helps you manage stress and anxiety on the go.

Health Unlocked

The social network for health - find and connect with people with a similar health condition.

Health Fabric

Supports you with your management of long term health conditions.