The National Haemoglobinopathy Registry (NHR)
The National Haemoglobinopathy Registry is a database of
patients with red cell disorders living in the UK. This new
database collects data, which is required by the Department of
Health from Haemoglobinopathy centres. The central aim of the
registry is to improve patient care.
Letters with more detail about NHR were sent out to all existing
patients. New patients will receive a letter once they are
registered with us and have not previously been registered by a
different centre in England.