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Leaflets

We have a number of factsheets to help young people to understand more about Barth Syndrome. Please find links to these below. If you have any questions or want to know more about Barth Syndrome, please don't hesitate to give the team a call using the links on our Contacts tab.

Living with Barth Syndrome 

Living with Barth Syndrome

 Cardiomyopathy in Barth Syndrome

Cardiomyopathy in Barth Syndrome

Neutropenia in Barth Syndrome

Neutropenia in Barth Syndrome

Genetics of Barth Syndrome 

Genetics of Barth Syndrome

Healthy Eating for Teenagers with Barth Syndrome 

Healthy Eating for Teenagers with Barth Syndrome

 

 

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