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Patient information

This page contains links to patient information booklets on a range of topics and some useful organisations and websites.  These will be updated as newer versions of these documents become available.  If there is anything not listed here that you have found helpful and you think it may benefit others, please let us know via our patient experience page.

Nutrition and swallowing difficulties

Swallowing - nutrition when it's difficult

OPA fact sheets: click on 1   2   3

Recipes from Macmillan (available via your clinical nurse specialist)

Diagnosing cancer

Upper Endoluminal Ultrasound (EUS) and Upper EUS with fine needle biopsy

PET/CT - diagnostic imaging service

Diagnostic or staging laparoscopy

Liver biopsy under ultrasound

Having an ERCP

Booklets on types of upper GI cancer

Understanding cancer of the oesophagus (available via your clinical nurse specialist)

Understanding stomach cancer (available via your clinical nurse specialist)

Understanding cancer of the pancreas (available via your clinical nurse specialist)

Gallbladder cancer

Cancer of the bile duct (cholangiocarcinoma)

Surgery

Oesophagectomy - surgerical removal of the oesophagus (gullet) - what's involved

Pancreaticoduodenectomy (Whipple's procedure)

Gastrectomy - what's involved

A guide to life after oesophageal/gastric surgery (oesophagectomy/gastrectomy)

Having an oesophageal stent - a guide for patients

Insertion of an oesophageal stent

Discharge Information Following Bypass Surgery Rouxen Y

Enhanced recovery for pancreatoduodenectomy (Whipple's procedure)

Enhanced recovery patient diary for oesophago-gastric surgical patients

Other treatments

Chemotherapy (available via your clinical nurse specialist)

Radiotherapy (available via your clinical nurse specialist)

Cancer trials (available via your clinical nurse specialist)

Alternatively all the above booklets can be accessed via Be.Macmillan

Support for you

Hospice teams

http://www.dorothyhouse.co.uk/

St Peter's Hospice - about us

Support groups/organisations

The oesophageal patients association 'former patients helping new patients'

GOSH Bristol based support group for those with oesophageal and gastric cancer

The Harbour Centre counselling services http://www.the-harbour.co.uk/

Cancer information centre BHOC

Penny Brohn Cancer Care http://www.pennybrohncancercare.org/

http://www.riprap.org.uk/    for teenagers/young adults when a parent has cancer

http://www.linkagebristol.org.uk/ for people wanting to increase their physical activity levels before, during and after treatment

http://www.bristolcab.org.uk/Projects-Macmillan.htm is a service to help people and their families affected by cancer and need financial support with benefit entitlement.

https://www.bristol.gov.uk/documents/20182/239131/Energise+flyer.pdf/263412d2-cfd2-427c-ae30-c15fa584f859 energise cancer rehabilitation program for those needing a formal plan to improve their physical activity levels.

National support

http://www.nhs.uk/Pages/HomePage.aspx

http://www.opa.org.uk/

www.pancreaticcancer.org.uk

http://www.macmillan.org.uk/Home.aspx

www.rare-cancer.org

www.cancerhelp.org.uk/trials

www.cancerresearchuk.org

www.patient.co.uk

http://cholangiocarcinoma.org/

http://www.netpatientfoundation.org/