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Cleft Useful Links

The following is a list of websites which our patients have found useful, please note that the South West Cleft Service is not responsible for the content of external websites.


Benefits (Benefits, Tax Credits and other financial help)


Changing Faces  (voluntary organisation working to improve things for people with visible differences or disfigurement)

CLAPA (voluntary organisation supporting people with clefts and their families)

Craniofacial Conditions

Contact a Family (Voluntary organisation supporting families with children with special needs and condition related support groups)

Craniofacial Conditions

Disability/Special Needs  (Disabled Living Foundation) (Gloucestershire health information)

Adult Learning disabilities

Ears  (The National Deaf Children's Society) (Supplier of headbands for swimming)


For information and booklets on weaning, please contact the cleft specialist nurses.


Homestart (support at home for preschool parents)  

Outlook (Psychosocial NHS service for people with appearance concerns)

Parenting (Bristol City Council Parenting hub) (Mumsnet) (formerly Parentline Plus)

Self Esteem/Self Confidence

Siblings (Information for adult siblings)


South Wales information

Please contact South Wales team for current information -

Toileting (voluntary organisation providing equipment, support and information)


Velo-Cardio Facial Syndrome/de George Syndrome